Presenters
Summary
Sickle cell disease is a genetic condition involving pain syndromes, infections, organ damage, and other disease complications. Prior to the 1950’s, the survival of individuals with sickle cell disease (SCD) to age 20 was 50%. However, today, 50% of individuals with SCD live past age 50. Although the mortality rate among those living with SCD has significantly decreased, the disease experience is still predominantly characterized by debilitating pain, especially among young adults. Support for children living with SCD is well integrated into healthcare systems. However, as these children transition into young adults, the resources needed to successfully guide this transition are often limited. Knowing how to effectively transition from pediatric care into adult care, managing SCD as a chronic illness as an adult, navigating relationships, family planning, advanced education and moving into the workforce are all areas guidance needed during this developmental phase of life. This poster will provide a review of the literature through the biobehavioral family therapy model. This model offers perspectives on the interplay between the biological, psychological, and social levels of individuals living with SCD. The goal of this presentation is to provide an understanding on the specific challenges individuals and families living with SCD face, as well as offer recommendations on how to effectively work with young adult patients living with sickle cell disease.
Objectives
- At the conclusion of this presentation, participants will be able to identify the challenges faced by young adults transitioning to adult care.
- At the conclusion of this presentation, participants will be able to identify the interplay between the biological, psychological, and social levels of individuals living with SCD.
- At the conclusion of this presentation, participants will be able to identify recommendations on how to effectively work with young adult patients living with sickle cell disease.