Presenters
- Constance van Eeghen, DrPH MHSA MBA, Assistant Professor, University of Vermont
- Jen Lavoie, BA, Patient Partner Co-Investigator, University of Vermont
- C.R. Macchi, PhD, LMFT, CFLE, Clinical Associate Professor, Arizona State University
- Hayley van Serke, PsyD, Manager Behavioral Health Consulting, Howard Brown Health
- Juvena Hitt, MPH, Project Manager, University of Vermont
Summary
Inequities in care stem, in part, from inequities in research. We conducted a comparative effectiveness trial on integrating behavioral health for people with multiple, chronic conditions (MCCs). We wanted to improve MCC community engagement and engage more voices of this marginalized, often silent, population. We asked 3,895 of our patient survey respondents for permission to contact them for an additional project; 90% agreed. The 398 respondents who agreed to receive more information were offered an opportunity to test a structured process of engagement in research using two virtual platforms: synchronous (Zoom) and asynchronous (Slack). Of these, 90 attended introduction orientation sessions and 59 patients and caregivers were able to participate in a series of 10 weekly conversations on these platforms. Participants represented 15 U.S. states with distributions of age, education, gender, race, ethnicity, marital, and employment status reflecting the population. Participants were grouped into five cohorts of 8-12 members, facilitated by providers, doctoral students, or patient advisors of the MCC community. Conversation was structured using 3 facilitated engagement processes: affinity diagraming, sharing lived experiences, and using an appreciative response process when engaged in collaboration. This workshop will introduce research stakeholders (patients, clinicians, researchers, and others) to the Partnering Guide tools and processes that resulted from this project. Attendees will trial the core tools of engagement. A timeline for a 60 minute workshop: 0-10: Introduction to the project, its development with MCC community members, and evaluation of outcomes 10-20: Review of the engagement tools on virtual platforms (if in person, attendees will use their own laptops or devices) 20-40: Trial of one engagement tool in small groups 40-55: Use of the appreciative response process to provide feedback 55-60: Final questions and access to the Partnering Guide for future use
Workshop Downloads
Objectives
- Describe the elements of the Partnering Guide for Healthcare Research
- Use engagement processes for including the voices and perspectives of patients and caregivers and other stakeholders in healthcare work
- Use appreciative response to build bi-direction learning and co-production of shared deliverables with patients, caregivers and other stakeholders
